Research & Statistics

     

    UCP does not conduct nor fund clinical research however the following organizations provide information on cerebral palsy and other disability research:

    Research

    Cerebral Palsy International Research Foundation
    The Cerebral Palsy International Research Foundation (CPIRF) is dedicated to funding research and educational activities directly relevant to discovering the cause, cure and evidence based care for those with cerebral palsy and related developmental disabilities.

    Cerebral Palsy Research News
    A free weekly bulletin from the Cerebral Palsy Alliance Research Institute featuring the latest cerebral palsy research as indexed in the NCBI, PubMed (Medline) and Entrez (GenBank) databases.

    Cerebral Palsy Research Registry
    The Cerebral Palsy Research Registry is a multi-institutional collaborative effort whose primary mission is to improve our understanding of cerebral palsy by connecting interested families with researchers studying cerebral palsy and to create a tool to investigate surveillance data such as the natural aging process of persons with cerebral palsy, current interventions, environmental modifications and services utilized by persons with cerebral palsy.

    National Institute on Neurological Disorders and Stroke
    NINDS conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas.

    Data and Statistics

    Cerebral Palsy Fact Sheet
    UCP’s fact sheet, including statistics, risk factors and effects.

    US Census Bureau Disability Statistics
    The Census Bureau serves as the leading source of quality data about the nation’s people and economy.

    CDC Disability and Health Data System
    DHDS allows you to browse for data about disability, psychological distress, and disability-associated health care expenditures. Data can be viewed in interactive maps and in data tables that can be customized or downloaded.

    Disability Compendium
    The Compendium is an annual publication of statistics on people with disabilities and government programs that serve the population with disabilities. Contains national and state level data.

    Disability and Health Data
    An interactive database system developed by the National Center for Health Statistics that contains the most recent monitoring data for Healthy People 2010, including data on disability and secondary conditions.

    National Survey of Children with Special Health Care Needs
    The National Survey of Children with Special Health Care Needs (CSHCN) provides information about CSHCN in all 50 States and the District of Columbia.

    Catalyst Center Chartbook on Coverage and Financing for Children and Youth with Special Health Care Needs
    Data on carefully selected indicators of health coverage and health care financing for CYSHCN in every state plus DC and Puerto Rico.

    Individuals with Disabilities Education Act (IDEA) Data Center
    This website provides public access to data about children and youth with disabilities served under the Individuals with Disabilities Education Act (IDEA) Parts B and C.

    Other Helpful Resources

    Directory of Clinical Trials
    ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.

    World Report on Disability
    Produced jointly by WHO and the World Bank, the Report suggests that more than a billion people in the world today experience disability. The report provides the best available evidence about what works to overcome barriers to health care, rehabilitation, education, employment, and support services, and to create the environments which will enable people with disabilities to flourish.

    UC Davis MIND Institute Distinguished Lecturer Series
    This lecture series features world-renowed experts, who are the the forefront of research on autism and other neurodevelopmental disorders. Their presentations will address the latest approaches to understanding and treating these complex conditions.

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